The sun may come out tomorrow, but it was SNOWING here yesterday

Whenever I go to an amusement park I stand in line for hours for the chance to ride the scariest, craziest roller coasters. When the ride ends my head is pounding and my brains are scrambled and I swear I'll never do it again. Yet half an hour later, there I am in another line. Riding the ups and downs, screaming in fear and in joy, is a lot more fun than sitting on my ass cruising through It's a Small World.

It's been a hard couple of weeks for a lot of us with extra special kids, which in a way almost makes me feel better to know I'm not the only one. Those moms who do have normal kids do not experience the lows we do, but they also don't experience the highs when their children accomplish nothing short of miracles. I also think often about other kids I know who have even more doctors appointments and medical issues than ours, yet triumph; it makes me feel lucky for the few challenges we do have.

I'm thankful for the career path I chose which allows me the flexibility to spend so much time driving from appointment to appointment and occasionally allows for a midday nap when I've had enough. I'm also thankful for my husband's great job and even greater health insurance which allows us to get Marielle the help she needs.

While there are many, many moments where I wish I just had a "normal" child, I realize that no one is normal. Everyone has something pop up sooner or later. I just wish there was some insurance plan that we've reached our quota and it's smooth sailing from here on out.